Each type of EDS has its own clinical diagnostic criteria. Clinical diagnostic criteria are a set of symptoms and characteristics observed in each condition. If a person meets the diagnostic criteria for a type of EDS, a genetic test should be done to confirm the diagnosis: https://www.ehlers-danlos.com/types/ The genetic cause(s) of hEDS have not yet been identified, so there is currently no genetic test available to diagnose hEDS. The diagnosis of hEDS is given to those who meet the clinical d
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❓How long does it take to get a diagnosis of Hypermobile Ehlers Danlos Syndrome after symptom onset? 🤯An average of 22.1 years.* ❌No one should have to wait that long for validation and treatment. ✅We're working on the solution, and it's almost here. ➡️Follow us to see it first. *Source: The Norris Lab, 2025. "Defining the Clinical Complexity of hEDS and HSD: A Global Survey of Diagnostic Challenge, Comorbidities, and Unmet Needs." https://www.medrxiv.org/content/10.1101/2025.06.05.25329074v1.f
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🧬 A Brief History of Ehlers-Danlos Syndrome (EDS) From Hippocrates describing unusual bruising in 400 BC, to the modern diagnostic criteria established in 2017, the story of EDS spans centuries of discovery and resilience. 💜 Each milestone brought greater understanding, but awareness still has a long way to go. 💬 Are you shocked by how under-recognized this condition remains after all these years? 📲 Share this post to spread awareness. 👥 Tag someone who needs to see this. #ComplexNeurology
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The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility. Dr. Clair Francomano provides an overview of the Ehlers-Danlos syndromes (EDS), discussing symptoms, impact on daily life, and
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Let’s go through some of the items on the EDS Society’s diagnostic checklist for hypermobile Ehlers Danlos Syndrome! I’m a doctor of physical therapy in the Chicago Loop and I’m accepting new patients! Schedule at coreptclinics.com 🦓🫶🏼 #hypermobility #physicaltherapy #hypermobilityawareness #ehlersdanlossyndrome #edsawareness #chronicallyill #physiotherapy #beightonscale
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