I never expected a simple musical hobby to introduce me to a global community of resilient and optimistic individuals. Each week, I now have the pleasure of interacting with those with CF around the ...
Dear Majority Leader Thune, Minority Leader Schumer, Speaker Johnson and Minority Leader Jeffries: On behalf of the undersigned patient, healthcare professional and industry organizations, we urge you ...
For more than 1.5 million people living with COPD, heart disease, pulmonary hypertension, pulmonary fibrosis, people awaiting lung transplants, and other advanced respiratory diseases, supplemental ...
Today, 27 leading patient, provider and professional organizations sent a letter to Congress to include the Supplemental Oxygen Access Reform (SOAR) Act (H.R. 2902/S.1406) in an end-of-year ...
For decades, I’ve fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day — taking no days off — because no ...
When I was a young kid, I remember when two new drugs went on the market: Fen-Phen and Redux. They were weight loss medications, and they were all the rage. People would even travel to Mexico to get ...
The Oregon & SW Washington Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to ...
The Cystic Fibrosis Foundation seeks to attract and develop junior faculty who will establish research careers in cystic fibrosis. The primary purpose of the K-Boost Award is to provide supplemental ...