The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...

After my son, Julius, was diagnosed with cystic fibrosis, I adjusted to his daily treatments and medical routines, and though I feel guilt and sadness seeing him becoming so familiar with his CF ...

For years, my son grew up as a perfectly healthy kid, despite being diagnosed with CF-related metabolic syndrome. But when he suddenly developed pancreatitis, I had a hunch it was actually related to ...

The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis. The Cystic ...

I’ve found that one of the greatest misconceptions about living with a chronic disease is that it is purely a physical battle. Every difficulty — physical or otherwise — manifests emotionally. For ...

Waiting. It’s not just a verb — it’s a state of being, an emotional terrain, a test of patience and resilience. For those of us living with cystic fibrosis, waiting is woven into the fabric of our ...

Being told it was time to consider a transplant came with thoughts of doubt and immense fear, as well as a few happier moments when I let my mind dream of the possibility of another chance at life.

On February 20, more than 150 advocates from across the country, including nearly 25 adults with cystic fibrosis, met with members of Congress and their staff during the Foundation’s 18th annual March ...