I never expected a simple musical hobby to introduce me to a global community of resilient and optimistic individuals. Each week, I now have the pleasure of interacting with those with CF around the ...
For decades, I’ve fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day — taking no days off — because no ...
I was 8 years old, standing in our family dining room with my dad, setting the table for my baby sister Jill's 2nd birthday celebration. Always older than my years, I remember so clearly saying to my ...
For more than 25 years, people with cystic fibrosis and their loved ones have helped raise awareness, support, and understanding of CF in the United States through national recognition events. Today, ...
On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...
As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine. As ...
BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...
The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...
Since 2013, I’ve had the privilege of being a fitness coach, nutrition coach, public speaker, influencer, and businesswoman. While my true passion lies in adventure — particularly physical challenges ...
I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...
Have you ever wondered if there was something else going on with you? Something else affecting you that you were not aware of? Well, I felt that way. Ever since I was young, I have always struggled ...
Our family’s journey has been a rollercoaster of challenges and triumphs since we welcomed our goofy boy, Owen, into the world. Now 20 months old, Owen’s life has already been marked by medical ...
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