Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

What Is Gene Therapy? The cystic fibrosis transmembrane conductance regulator (CFTR) gene contains the instructions for making the CFTR protein. When there is a mutation — or alteration — in the ...

The Impact of the CF Community This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, ...

Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to ...

After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.

You're probably wondering why we didn't go to any shelters. Well, to answer that question, we tried to, and they would take my partner in a heartbeat, no questions asked. However, with my cystic ...

It’s three weeks before the Kansas City Great Strides walk as I’m writing this, and I’ve decided my husband and I will take our twins to the walk this year. We haven’t been to one since before our ...

Hearing the words cystic fibrosis can be a lot for first-time parents — or any parent. In the fall of 2019, my husband David and I showed up for an OB-GYN appointment. I was about 11 weeks pregnant ...

*Respondents were able to select multiple answers to this question. The survey results reaffirm the importance of the Foundation’s mission to find a cure for CF and to provide all people with CF the ...

This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...

On behalf of the people living with cystic fibrosis in Alaska, we write to express our support for SB 133, which makes several important reforms to the prior authorization process. PAs can delay ...