I joined my local EMS squad to give back to my community, and that experience led me to pursue a career in medical assisting. Through anxiety, the pandemic, and personal challenges, I’ve stayed ...

When my daughter was first diagnosed with cystic fibrosis, the misinformation I found online only deepened my fears. But thanks to the guidance and compassion of our care team, I’ve realized life with ...

After undergoing an emergency double-lung transplant, I was heartbroken to learn that getting pregnant would no longer be a viable option for me. That moment marked the beginning of our ongoing ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

Grief is just one of the many emotions we all experience in life that makes us human. It is not linear. Some days you may feel like the world is caving in around you, while other days the weight is ...

New modulators in development by the CF-specific company could provide unique treatment options for the underlying cause of cystic fibrosis for many people with the disease BETHESDA, Md. — The Cystic ...

On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...

Becoming a mother, I knew in my heart I wanted to do anything I could to benefit the well-being of my son, Isaac, and breastfeeding was one of them. Before having Isaac, I did everything I could to ...

The U.S. Food and Drug Administration approved the use of lumacaftor/ivacaftor (Orkambi®) today for children with cystic fibrosis ages 2 to 5 who have two copies of the F508del mutation. The U.S. Food ...

Kasey grew up in Baltimore, Maryland, after being diagnosed with cystic fibrosis when she was 4 years old. Since receiving a lung transplant in 2016, Kasey has gotten married and she and her husband ...