When columnist Joe MacDonald woke up Saturday morning with a strained back, his son Caeleb offered his father some lessons in caregiving.

Zyryenj "Gft" S. Agoncillo says he is a testament that a person with a bleeding disorder can live a meaningful life and raise ...

I have two dogs, Laggie and Hildie, that are a mix of border collie and Australian shepherd. They’re 5 years old and came from the same litter, even sharing the same sac, which is pretty rare. Laggie ...

Hemophilia A treatments were linked to different immune patterns in children in a small study of Hemlibra and factor VIII ...

Nearly a third of U.S. hemophilia treatment centers lack genetic counseling services, despite their recognized value, a study ...

A photograph leads columnist Joe MacDonald to reflect on his son Julian's long journey with hemophilia, and the life he ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google I use Spotify to listen to my favorite podcasts, audiobooks, and ...

I’ve noticed something strange over the years: Adults with hemophilia sometimes disappear from conversations that were built for them. I first noticed it in support groups. The louder caregivers ...

I’ve been standing in front of my closet longer than I’d like to admit. It’s not vanity. It’s because I know what I want the clothes to do: I want to walk into a marble hallway and have the person ...

When my sons were small, I didn’t give speaking up on their behalf a second thought. As toddlers, they had little interest in sitting through difficult explanations about their bodies and about ...

The swimming pool was the best place to be for a young girl growing up in the hot Texas summers. I’d hand over my crumpled dollar at the counter and spend the whole day there. After a quick shower, ...