Stomp4d
Patients suffering from rare skin disease deal with 'insensitive questions and funny stares'
Seventeen-year-old Hamzah has congenital ichthyosis, a disorder that causes hard, scaly skin. It also affects his vision, ...
Polar Plunge in honor of Staten Islander with rare skin disease planned for this month
STATEN ISLAND, N.Y. — A fundraising Polar Plunge to honor John Hudson Dilgen will take place this month in South Beach to ...
Terrifying and painful new skin disease ravages young father, with doctors warning it will kill him
A 39-year-old father is suffering from a horrifically painful skin disease that doctors can't cure or even definitively ...
Opinion
BusinessWorld5dOpinion
Transforming rare disease outcomes
Reivi Dela Cruz was only four years old when he was diagnosed with Neurofibromatosis Type 1 (NF1), a genetic condition that causes tumors (neurofibromas, which are usually non-cancerous) to grow on or ...
22-Year-Old Dies Of Rare Skin Disorder After Month-Long Treatment In Indore
Indore (Madhya Pradesh): A 22-year-old woman from Shujalpur, lost her life while undergoing treatment for a rare and severe ...
KHQ2d
Spokane man battles rare skin condition perplexing Johns Hopkins doctors
Ryan Becker from Spokane is battling a rare medical condition that has left doctors at the Mayo Clinic and Johns Hopkins ...
EL PAÍS English2d
The most expensive drug ever approved: A gene therapy that cures butterfly skin and could cost $20 million per patient
Mía had dystrophic epidermolysis bullosa, better known as butterfly skin due to the extreme fragility of this tissue in ...
Nasdaq10d
Quoin Pharmaceuticals Files Patent Applications for Topical Rapamycin Formulations Targeting Rare Skin Diseases
The proprietary Invisicare delivery technology has exclusive rights for all orphan rare skin disease applications, enhancing Quoin's competitive advantage in the pharmaceutical market. The company ...
Independent.ie19d
Dublin girl with rare skin disease excited to go to secondary school
A Dublin girl born with the most severe form of butterfly skin is excited as she prepares to go to secondary school.
North Carolina Health News11h
Unraveling an oral health mystery leads to rare autoimmune diagnosis
Autoimmune, pemphigus, dermatology, medical odyssey, oral health mystery, oral health, blisters, OASIS, Lupus, Sjogren's, ...
Paget’s Disease: Diagnosis, Management, and Insights into the Breast (PDB)
Diagnosis of PDB is a combination of clinical evaluation, imaging and histopathological assessment. If an underlying cancer ...