Polar Plunge in honor of Staten Islander with rare skin disease planned for this month
STATEN ISLAND, N.Y. — A fundraising Polar Plunge to honor John Hudson Dilgen will take place this month in South Beach to ...
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Spokane man battles rare skin condition perplexing Johns Hopkins doctors
Ryan Becker from Spokane is battling a rare medical condition that has left doctors at the Mayo Clinic and Johns Hopkins ...
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17 Rare Cancers You May Never Have Heard Of
Years ago, a family member was diagnosed with an extremely rare cancer: Liposarcoma of the Spermatic Cord. Fewer than 200 ...
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Patients suffering from rare skin disease deal with 'insensitive questions and funny stares'
Seventeen-year-old Hamzah has congenital ichthyosis, a disorder that causes hard, scaly skin. It also affects his vision, ...
The Independent19d
Girl with rare skin disease excited to go to secondary school
A Dublin girl born with the most severe form of butterfly skin is excited as she prepares ... to secondary school later this year. Ahead of Rare Disease Day on Friday, Debra, the national charity ...
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Quoin Pharmaceuticals Files Patent Applications for Topical Rapamycin Formulations Targeting Rare Skin Diseases
The proprietary Invisicare delivery technology has exclusive rights for all orphan rare skin disease applications, enhancing Quoin's competitive advantage in the pharmaceutical market. The company ...
China Internet Information Center15d
Feature: Chinese man with rare skin disease captures stories of other patients via lens
said the hospital has established a hereditary skin disease clinic to ensure the availability of long-term treatment for patients, including "butterfly children" and other rare disease sufferers.
EL PAÍS English2d
The most expensive drug ever approved: A gene therapy that cures butterfly skin and could cost $20 million per patient
Mía had dystrophic epidermolysis bullosa, better known as butterfly skin due to the extreme fragility of this tissue in ...
Medscape1d
From Eczema to Rare Lymphoma: Delayed Diagnosis in a Child
Despite multiple treatments for eczema and pityriasis alba, a child’s skin condition worsened until a biopsy revealed mycosis fungoides.
Yahoo Finance10d
Quoin Pharmaceuticals Files U.S. and International Patent Applications for Novel Topical Rapamycin Formulations to Treat Rare Disease Indications
ASHBURN, Va., March 04, 2025 (GLOBE NEWSWIRE) -- Quoin Pharmaceuticals Ltd. (NASDAQ: QNRX) (the “Company” or “Quoin”), a late clinical stage, specialty ...