I never expected a simple musical hobby to introduce me to a global community of resilient and optimistic individuals. Each week, I now have the pleasure of interacting with those with CF around the ...
Dear Majority Leader Thune, Minority Leader Schumer, Speaker Johnson and Minority Leader Jeffries: On behalf of the undersigned patient, healthcare professional and industry organizations, we urge you ...
For more than 1.5 million people living with COPD, heart disease, pulmonary hypertension, pulmonary fibrosis, people awaiting lung transplants, and other advanced respiratory diseases, supplemental ...
On behalf of the Cystic Fibrosis Foundation, we write to provide comments in response to the Food and Drug Administration’s draft guidance on Innovative Designs for Clinical Trials of Cellular and ...
Cystic fibrosis is a rare genetic disease that affects nearly 40,000 adults and children in the United States. In people with CF, mutations in the CFTR gene result in a buildup of thick mucus in ...
Today, 27 leading patient, provider and professional organizations sent a letter to Congress to include the Supplemental Oxygen Access Reform (SOAR) Act (H.R. 2902/S.1406) in an end-of-year ...
For decades, I’ve fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day — taking no days off — because no ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...
Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...
I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
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