LifeArc partners with Elpida Therapeutics to advance three gene therapies for ultra-rare neurodegenerative diseases in childrenLifeArc provides ...

GENTILLY, France, February 10, 2026--(BUSINESS WIRE)--THX Pharma (Theranexus) and Biocodex, an independent international pharmaceutical group, today announced the execution of a strategic licensing ...

UPDATE: The 4th annual Take a Swing Fore Batten online auction will be accepting bids from March 15-29, 2021. Click here to browse the incredible collection of items, including tee times at Oakmont, ...

A year ago, golf-course architect David Kahn and his wife Karen went public with every parent’s worst nightmare: their twin daughters Amelia and Makenzie are battling Batten disease, the cruelest ...

Music therapy may be helpful for children with a rare form of dementia. adriaticfoto/ Shutterstock When we hear the word “dementia”, we usually think of memory loss in older adults. But there’s ...

WEBVTT THE SECOND ANNUAL BATTIN’ FOR BATTEN IS ALL FUN AND GAMES AND HOPES TO RAISE MONEY FOR DREW’S FUTURE. DREW SILLMAN IS 7-YEARS-OLD AND ALREADY THE JUVENILE BATTEN’S DISEASE HAS TAKEN MOST OF HIS ...

A treatment for juvenile Batten disease has been tested in a mouse model and the results have shown reduced in symptoms and improved longevity. The results of the study were published in Nature ...

The FDA-approved, lipid-lowering medication gemfibrozil may prevent the progression of juvenile Batten disease, according to researchers at RUSH. Results from the study were recently published in The ...

Kristyna Wentz-Graff / OHSU Scientists at Oregon’s National Primate Research Center recently found some of their Japanese macaque monkeys had developed Batten disease. The outbreak was naturally ...

In episode three of Hulu's TV show, The Act, Gypsy Rose and Dee Dee Blanchard attend a cosplay convention. There, Dee Dee meets a man whose son suffered from (and later died of) Batten disease. Batten ...

LifeArc, the self-funded UK medical research organisation turning promising science into patient impact, with a focus on rare diseases and drug-resistant infections, has announced a new partnership ...